Cerebral Palsy

Lost in Space

 Lost in Space – 1964  (Mary Poppins)

“Danger, Will Robinson! Danger!” yelled a third grader as she got into the robot’s part, waving her arms around like a frantic parent. I  got stuck playing a bad guy alien and walked mummy-like toward the girl who had nabbed the prime role of Penny Robinson. I added head jerks and let out,“Beep! Boop! Ding!” in the way an alien would do as I chased the Robinson family.  “Run!” yelled the good guys as I followed the retreating kids and raised my arms to seem scarier.   

At St. Edmund’s School my classmates and I recreated scenes from hit tv shows at recess. This week’s television obsession was “Lost in Space.” We girls vied for roles each day and half-imitated/ half-made up episodes about the Robinsons in outer space. During this Tuesday’s recess, I did not see the skinny new girl right behind me. Skinny Girl mimicked my spastic left arm movements and limping left leg.  A group of first graders giggled and encouraged the newcomer’s accurate imitation of my cerebral palsy crookedness. When I turned to see who was laughing, a popular seventh grader had cut across the playground on her way to the school’s front office and noticed Skinny Girl’s shenanigans.  

She yanked the performer by her fake-crippled left arm. “What are you doing?” she demanded. Before the child could answer, Seventh Grader lit into her. “How dare you? Don’t you see she’s crippled? How would you like to have to walk lopsided?  You think it’s funny?  Funny to be born with a birth defect – to be slower and weaker than everyone else?  Wait until I tell Sister Joan what you did!” And all during her lecture Seventh Grader shook the girl’s arm as other kids gathered around. First, they stared at Skinny Girl looking like a dish rag someone was twisting the water out of. Then they looked at me. Pity and sadness shone on each kid’s face. Had they always looked at me that way?   

Next Seventh Grader yanked whimpering Skinny Girl to stand in front of me.  “Apologize right now!”  

The younger girl’s navy blue skirt had a safety pin holding it up at her waist, and all that shaking had pulled the white blouse out of its tucked-in position. I noticed that her hem was frayed and stained. Also, the girl’s thin black hair was half-in rubber band pigtails and half-out. I thought that I should be apologizing to her for the mess of the way she looked. 

“Go ahead. Say you’re sorry,” Seventh Grader told her. 

The young girl stared at her untied, dirty saddle oxfords and whispered, “Sorry.”  

“Louder! So she can hear you.” 

“I can hear her,” I said, looking down at my own ugly, scuffed brown corrective shoes. 

“You ok?” Seventh Grader asked me, and I nodded without looking up. I knew if I said anything else, I’d be crying through the rest of recess. Skinny Girl was half-dragged towards the front office.

An empathic third grader put her arm around my shoulder, and the whole “Lost in Space” game was shot to shit. “That kid is just a stupid Yankee from Shreveport,” my friend said. I heaved a sigh and felt even sorrier for Skinny Girl. 

“Gotta pee,” I said before turning to run to the bathroom. Once safe inside a stall, I felt fortunate that I’d chosen one with a lock that actually worked. The words “crippled” and “birth defect” bounced around my brain over and over: “crippled…defect…defect…defect…crip…crip…defect…defect.”   I turned the words into a type of music I heard on KVPI.  “defect, defect, deco, deco, zydeco, zydeco, zydeco.” 

I tapped my black umbrella on the floor a few times and looked around the mess of a nursery.  I removed my neat black hat with white flowers on it and patted my neat brown bun. Two small children looked up at me. “First, we must clean your untidy room,” I said with a confident smile. I snapped the fingers of both hands. Music played, and a robin sang outside the nursery window. As I sang a song about sugar and medicine, I taught the boy and girl how to make their room as neat and sweet as I was. With a whistle here and umbrella taps there, the beds were made, toys were put away, and the room was “practically perfect in every way.”  I even had the robin accompany me in the song. The children loved my magic and we became instant best friends. Without warning, the song ended and a long ringing erupted from the hall.

Recess was over. I flushed the unused toilet, wet my fingers in the sink, ran them through my hair, and looked in the mirror to make sure my eyes were dry before I rushed outside to line up outside Sister Grace’s classroom door.